Thursday, January 29, 2009

Molly's Corner

I am so at odds as to what to do with Molly's teacher. She is literally late to her appointment or she doesn't show due to a sick kid. What also gets me is that when she is here, she has drama back at the house. I don't know if I should say something or not. Molly is the one that suffers and she is my number one priority but I also don't want to "stir the pot". I have to decide if it's worth the trouble to call and complain or not.

The occupational therapist and the physical therapist came however. The PT was absolutely dumbfounded as to how well Molly is doing. She is completely independent with walking, turns, pivots, and picks up a ball from a standing position--all with ease. I don't think she has been out since early November (really? that ALWAYS happens) and that is when Molly really took off on her gross motor skills.

Molly completed all of the OT's tasks with ease also. She is impressed with how well she drinks from an open cup and all of her fine motor skills.

They complimented me on how they are always confident that Molly will complete her "homework" because of how hard Mike and I work with her. (pat, pat)

How it stands is that Molly will have OT 6x/year and PT 6X/month. They will alternate months so I will have PT or OT here each month. I guess I am OK with that because they give me things to work with Molly on and it probably takes 2 months to really master whatever skill they want her to master. Speech? Oh, they will put in a speech "consult" and go from there. On a positive note Molly said, "take a bath" clear as day and is always saying, "No, baby, mommy, and ah done" regularly now so she will probably teach herself before too long. Not funny. Not funny in the least bit.

Wednesday, January 28, 2009

Really?

I have said this too many times to count in the past few days...
1) Molly's "teacher" couldn't make it yesterday; she had a sick child.

REALLY??!!. That hardly ever happens (only like every other visit! Grrr...)

2) We get a note in the mail from Austin's school saying that he "is failing or in danger of failing" his Advanced Algebra class. Further investigation reveals he is only missing ONE, yes, I said ONE assignment. Last I checked a "C+" is not in danger of failing. Oh, they made a mistake.

REALLY???!!! That hardley ever happens. (Only every stickin' semester!!)

3) ($##@)%()(:. I can't say on this site but trust me on this one.

REALLY??!! You are battin' a 500 here!

4) Day FOUR of feeling like complete garbage. I miss work last night. I literally drag myself out of bed to go to an important work meeting this morning and as soon as I attempt (noticed the word "attempt" here people! I have NO voice!) to say something, the table of co-workers say, "Wow! You sound terrible!"

REALLY??!! I have been hearing this for FOUR days. It's not a big deal that people are saying that because it is obvious but for me, it's frustrating as @#$% as I am a talker, I love to talk and I can't. I can't talk. I can't talk---UGH!!!!

5) And my favorite. Did you hear that it really wasn't the thimerosal in the MMR vaccine that causes austism (because there are now "thimerosal-free" vaccines)? They are now thinking it's something with the DNA?

REALLY???!!
OK, yes there is an increase in Autsim but to blame a vaccination that saves children's lives REALLY worth it?

Hope everyone is having a wonderful day and hopefully, I will talk to you all tomorrow--LOL!!

Monday, January 26, 2009

Time out, Sickies, and Therapies...

This past weekend, my dear friend Naomi took the girls and had a sleep over with them. My mom took the boys. Mike and I went out with a couple of his friends from high school. I don't get to see them too often so it was nice to catch up. Boy, do I miss those guys!

We played the game Things. Ok, so everyone needs to run out and buy this game. I don't EVER remembering laughing so hard in my entire life!! It's a great game to play with your older kids, friends, and at family functions.

I am sick--way sick. I lost my voice and for the first time, I am grateful to the signing that I have taught my girls because today, that is their only form of communication. I have a terrible sore throat, I feel like I have pneumonia, and congestion. Ugh! Mommy's don't have time to be sick.

Tomorrow we are meeting with Molly's Therapist along with OT and PT to review her IEP. Notice there is NO Speech Therapist??? I am beyond bitter about this and will probably have to pay out of pocket if I ever want Molly to talk. I don't know what it is but I think the county I live in is "poor" if that makes sense. When we had our very first meeting with group when Molly was 6 weeks old, they told us we can have as many or as little of services as we want. I only get OT 4x/year (have asked for monthly visits). PT is suppose to come 1x/month but I think she is "overbooked" and maybe comes every 6 weeks (I have asked for 2x/month!) And I can't seem to get Speech! What gives here people? So, tomorrow, I will fight for MORE OT and beg for Speech Therapy in the coming year.

Friday, January 23, 2009

The Good Lookin' Blog

This post is long overdo.

For those of you that have followed my blog, you have noticed that it has been anything but "cute". I am computer iliterate but I have always wanted my blog to be "cute" and neat and organized. As most of you know, I work full time and do not have a lot of "spare time" to revamp my blog.

I went out on a limb and asked Bethany (well, she did offer!!) to make a new header for me. I really wanted new pictures of the kids but again, do not have the time so I had her make one up from the picture I had.

In the process, she changed some things around so now my blog looks totally AWSOME!! Don't you all agree??

Thanks, Bethany!

Potty Time & Mistevious Molly

At lease once a day, I like to "introduce" the potty to Miss Thing (Maggie Jean, of course). It has kinda of bit me in the butt because now it's like a game to her. She loves to sit on the toilet (and do nothing!), then wipe her cute little pooper and wash her hands. So yesterday when she asked to go potty on the big girl pot I was thinking to myself, "OK--here we go again. Let the games begin". But to my surprise, she actually went potty, then again, and again....

She has now had only ONE accident in the past 24 hours and her night diaper was practically dry! Wow! So it was worth all the "practice" runs. We will see how long this lasts, however.


Why doesn't she have clothes on, you may ask??


Because her new thing is to wear her swimsuit around! (No one told her it was below ZERO outside today but she doesn't need to know that)



__________________________________________

Molly is in the habit of throwing and dumping EVERYTHING!! And I mean everything! It is making Mike and I crazy. If you don't want it dumped, keep it out of Molly's reach.

Last night I was folding clothes in the family room and Mike was on the computer, therefore, Molly was left unattended and look what happened??



Little stinker......

Tuesday, January 20, 2009

That's My Girl--whoa hoo!

Molly has been saying "dada" for quite a while. She says it in context as well. Each day when Mike gets home from work, her whole face lights up, walks her short stubby little legs over to her daddy as fast as she can saying, "hi, dada, hi, dada".

We have been working VERY hard on the "M" sound with her. We empahsize everything that starts with "M". Mike called me last night on my way to work to tell me that Molly was saying, "mama"!! And then I heard it--the sweet name "MAMA!!"

Whoa hoo! I am sooooooo proud!!!!

Monday, January 19, 2009

A mother's touch.

Remember the best Christmas Present ever? Inside this scrapbook my mom included a poem. It, of course, brought me to tears. It also made me really think. I mean REALLY think about how short life is and how soon my babies will no longer be babies and they will all be big and gone. I cherish every little kiss and cute little prayers, every "night, night storybook" and every piece of homework just a little bit more because all too soon, this poem will ring true for me....

To My Grown Up Daughter
My hands were busy through the day;
I didn't have much time to play
The little games you asked me-
I didn't have much time for you.
I'd wash your clothes, I'd sew and cook;
But when you'd bring me your picture book
And ask me please to share you fun,
I'd say: "A little later, daughter."

I'd tuck you in all sage at night,
And hear your prayers, turn out the light,
Then tip-toe softly to the door...
I wish I'd stayed a minute more.
For life is short, the years rush past...
A little girl grows up so fast.
No longer is she at your side,
Her precious secrets to confide.
The picture books are put away;
There are no longer games to play.
No good-night kiss, no prayers to hear---
That all belongs to yesteryear.

My hands, once busy, now are still.
The days are long and hard to fill.
I wish I could go back and do
The little things you asked me to.

Sunday, January 18, 2009

Weekend with Bugs!




Yesterday, Bugs (Gavin) and I went to see the movie "Marley and Me". Of course, during the two hour movie, he had to go to the bathroom FOUR times. There was only a handful of people in the theater but kept making people laugh. He is only five and his interpretation of what was going on what pretty cute and the fact that he's just a funny kid.

Today, Bugs and I went to watch his girlfriend, Chloe, dance at her recital. He only went to the bathroom TWO times in the hour and a half we were there. After the recital, we had to get Chloe a belated birthday present and he insisted on picking it out. He kept getting distracted by all the batman toys, the cars, and trucks. Mommy ended up picking it out. He went to the bathroom before leaving Target.

We then went out to eat with Chloes family (Ok, Ok, I know you are all wondering. Chloes is my friends daughter. It's an arranged marriage, you see) and he was just being so darn funny!! He went to the bathroom only ONE, yup, ONE time while we were there for an hour.

We got home and he was eating a handful of Oreo cookies and he says to me, "Mom! This is so weird! My brain is talking to me and it keeps telling me to eat more and more Oreos! Isn't that weird?! I am not thinking, mom. It is telling me to eat more cookies!"

The kid cracks me up! I had a great time with "Gavin and Me" this weekend

He is suppose to be on a bladder medication to help him control his bladder but I really thought he was OK off of it.

Tonight, he got his bladder medication...

Saturday, January 17, 2009

Mommy's Soapbox Part I

Being a nurse means working with many, many woman. This also means that there is a lot of talky talky about babies and families and hopes and dreams of becoming pregnant and making and/or adding to a family.

If I hear one more person say, "I am running out of time. All too soon I will be 35 and you know what that means", I may just have to throw up!

Yes, I do know what that means! Your odds increase of having a child with down syndrome! Your life may take to most wonderful unexpected turn and be changed forever! You just might wake up everyday and be greeted by those angel eyes burning a hole through your heart! You just might feel so much love that you feel like you could explode at any minute! Heck, you might FINALLY slow down and smell the roses!!!!!!

A friend at work was saying that she would be willing to have a baby "as late as 37". I just couldn't resist and responded with, "You just might end up with a child with Down Syndrome?!" She said that she was once scared of that but since she has known me, she is no longer afraid of having a child with special needs. That meant so much to me. That I have actually shown someone that it's not as scary as it seems.

I know that people don't mean to be offensive, I do. I know that these fears are real and I do know if they ever end up in that situation it would take time to adjust and in the end, I know that they would be OK. It almost makes me sad that woman actually stop having children, even if they are not ready to, at age 35 for the fear of having a child with DS.

I will leave you with a FACT related to Down Syndrome...
The incidence of Down syndrome increases with advancing maternal age. However, 80% of children with Down syndrome are born to women under 35 years of age.

CLARIFICATION:
At times woman ARE referring to their "biological" clock (as my friend was). In this post I am referring to the comments about "something" being wrong with the baby after 35. So, Chan made a valid point and I may be a little hypersensitive regarding this subject.

Monday, January 12, 2009

Signing Time is Back!!

I bought two Baby Signing Time videos for the girls a long time ago and they loved watching them. It was also amazing watching Molly do some of the signs.

5-6 months ago, they stopped playing on the DVD player. An error message kept coming up on the screen stating that it could not read the disc. Well, they were played a lot and had a few scratches in them (I am notorious for not taking care of DVD's for whatever reason) and I just thought that we had our fun and now it's all over until....

I started to see more and more DVD's not working. It took us a long time but realized that it wasn't my mistreated DVD's that was at fault, it was the DVD player itself. So we bought a new one this weekend and Voila!.

The babysitter is back!!! And Molly does almost all of the signs! My smart girl...

Sunday, January 11, 2009

An Inspirational Moment...

There is a 40-something year old man in our community with Down Syndrome. He is genuine, sweet, and a caring individual.

For the most part, he acts and speaks appropriately. He is fairly independent (he bikes around town, I think but am not sure), is the assistant for our high school wrestling team, and goes to the local bar for a "Dew" every once in a while to mingle. He is just so sweet. He gives me so much hope for Molly.

My favorite part about him? Every Sunday, at the 10:30 mass, he is a Eucharistic minister! How awesome is that? I guess I should mention that he is spiritual, too.

Saturday, January 10, 2009

Girls and their wardrobe!

Auntie Lea picked up the girls' winter jackets and hat for next year on clearance last week. I had them try them on to make sure that they were going to fit next year and I literally have not been able to get Maggie out of them!! She wears them from sun up to sun down, yes, including the hat.

The pink jacket is a 3T and is intended for Molly and the brown one is a 4T for Maggie. I guess the pink one will be Maggie's for the remainder of this year and the brown one for her next year.

Mike made a very valid point. She is a total girly girl and just loves getting new clothes! Hee! Hee!


Friday, January 9, 2009

Conversation with Gavin

Mom: Gavin, you are just too cute!

Gavin: Well, you are just too beautiful. Just like a princess. (pause)
No, mom! You are sooooo much more beautiful than a princess.

Ahhhh, this little boy is so good at tugging at my heart strings!

Size doesn't matter

But it sure make life interesting....

Yes, I have twin girls. Maggie is 7 minutes older than Molly. They were one ounce apart at birth and one inch different in height. As they get older, the gap between their height gets bigger and bigger. The following picture is a great example as to the extent of it. Maggie is wearing a 3T jammy (from Auntie Pam) and the bottom rest right below her knee. Molly is wearing a 2T jammy and the bottom rests below her ankle!



The many "what and why's" of blogging

Going into the New Year, I find myself wondering what I would like my blog to be. The answer, I have found, seems to be quite complex. I think about the blogs that I follow and why I enjoy them.

I love hearing about the day to day activities of families with special needs and without but really like to follow the families that are similar to my own. I also love blogs that are "real" so to speak that speak of the highs and lows of day to day life. (I think of Kelly's blog as a fine example of this. Hers is entertaining and real). I tend to shy away from the blogs that tend to speak of only the highs in life. I am bored with, "we had so much fun!" and "I am so blessed and so lucky". Don't get me wrong, I feel lucky and blessed each day too but some blogs tend to OVERDO that section of life and let's face it, no ones life is that perfect. Am I right?

I also like pictures. Lots and lots of pictures! There are a couple blogs, an example being Michelle's blog where pictures are posted almost daily.

I also love the inspirational blogs. People inspire me. Inspire me to be a bigger and better person; to try new things; to be a better mom and wife.

I also find that in the blogging world, there is a lot of support out there. I love the prayer lists that are out there. While I read about families that are dealing with the new diagnosis of DS, diabetes, leukemia, a trying pregnancy, etc. I am astounded by the amount of support and prayers that are out there for these families. That is so awesome!

So with that said, I have find that in the coming year, I have a lot to blog about. The ups and downs of raising FOUR (OMG! Really? I have FOUR kiddos!) kids, one with special needs. I have to get that camera charged up to keep those photos coming. Maybe this is the year to upgrade and get photo shop for the computer. I would also like to be a better, stronger advocate for the DS community and focus my attention of this, to "inspire" families to embrace their child with DS and see the joys of this special gift we have received. I will also like to keep the faith. I will focus some entries on fellow bloggers that need extra thoughts and prayers because God forbid, if it was my turn to need them, I know they would be there for me.

Tuesday, January 6, 2009

It Struck A Nerve!

I was watching a show last night about how the "Safe Place for Newborns" Act got started. (The act that allows woman to drop their newborn babies off at any hospital or fire station with no questions ask and they will not be prosecuted).

This one prosecuter came on stating that he doesn't agree with it because these mothers need to be held responsible for their actions and "what about the babies that are imperfect. Like a baby with Down Syndrome. Do they get to drop these type of children with no questions asked?"

What a dippy! Think before you speak you moron!!!!!!! (He obviously isn't aware of the long waiting list to adopt the imperect DS child!)

Saturday, January 3, 2009

My Toothless Wonder

Mr. Gavin lost yet another tooth today! There is such a huge gap there now. It's looks funny, yet so cute. You know, I just realized that I didn't get any pictures when he lost his first tooth right before Christmas. Bummer.


Thursday, January 1, 2009

Happy New Year!!



I have to work this New Years which really bums me out. New Years is MY holiday! You see, New Years Day is my birthday. Each year, we go out with some friends and bring in the New Year. Now that we have kids, things are a little more mellow but I still enjoy getting together with friends and having a few drinks and snacks and talking about what the New Year will bring. Not to mention, after midnight, my phone usually blows up with Happy Birthday calls from friends from high school, college and now. It's the one day that I feel especially important and loved. But tonight, I am important in the life of a baby girl that I am taking care of at work and that, too, is a great feeling.

I am 34 years old today. I am in the best years of my life. I so often hear "Oh, to be young again." Um, nope! Not me. The teenage years are years of discovery; of who you are and who you want to be and where do you belong? The 20's were of the poor college days and dating and kissing frogs trying to find that one true love, the one to marry. Don't get me wrong, the 20's were a lot of fun but I think I am having the most fun now! In my 30's, I know who I am, I know who I love (I married my best friend!), and I have established and completed my family as a unit. As Mike puts it, "We're just living the dream!"

So, CHEERS TO 2009!!!!!!!!!!