Thursday, March 5, 2009

Heartwarming story

Yeah, yeah, yeah, I have been MIA for a while now. Just got done working a lot of HARD and LONG days.

I started this blog with the intent to journal about my family. This is still true but I have found that I have enjoyed blogging about our life with a child with special needs and down syndrome.From the moment we learned of her diagnosis, I have taken such a strong and deep interest and desire to educate myself and others of what DS means. I have such a deep love for all children with DS. They warm my heart. I feel so lucky to have Molly in our family. She teaches not only our family but friends and neighbors so much. In other words, this blog entry will be again about life with a special needs child.

Recently, I have come in contact with a family with a surprise diagnosis of Trisomy 13. It brought me back to the early days of our surprise diagnosis. Me and this mom have a lot in common and talked for quite sometime. And by chance (or not??), I came across an email that I have saved in my box for over two years. I received this from an online support group and it really gave me encouragement. I shared it with this mom and I feel inclined to share it with you all. (I did forward it to my family and friends so this will be a repeat for you but is worth reading again!).

"As a small group of political and church leaders look on, Jesus lifts a mentally handicapped child out of her high chair, kisses her and sits her on his knee. He dips a crust of bread in wine and feeds it to her, morsel by morsel. As he does so, Jesus says:"I know what you are thinking. You need a sign. What better one could I give than to make this little one whole and new? I could do it; but I will not. I am the Lord and not a conjuror. I gave this mite a gift I denied all of you -- eternal innocence. To you she looks imperfect -- but to me she is flawless, like the bud that dies unopened or the fledgling that falls from the nest to be devoured by ants. She will never offend me, as all of you have done. She will never pervert or destroy the work of {my} hands. She is necessary to you. She will evoke the kindness that will keep you human. Her infirmity will prompt you to gratitude for your own good fortune...More! She will remind you that every day I am who I am, that my ways are not your ways and that the smallest dust mote whirled in the darkest space does not fall out of my hand...I have chosen you. You have not chosen me. This little one is my sign to you. Treasure her!"

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