Thursday, March 19, 2009

Would I? {{LOOOONG POST!}}

Take Miss Molly's Extra Chromosome away if given the chance? (this is the blogger buzz today)
Short Version: Not in this lifetime

Long version: I am in love with all my kids. They each teach me and show me something new each day. I don't know if somewhere, deep down, I knew that I would have a child with special needs but I embrace every minute with her. It frustrates me that I have to work so hard with her on so many things, yet, I love every second of it. I get so excited and proud and start crying everytime she does something new! What an awesome, awesome feeling that is.
When I am sad, sooooo darn sad, by the days events, I get home or wake up to that sweet little princess looking at me saying, "mama" and smiling. The big unconditional loving hugs are breathtaking. Yes, absolutely breathtaking. My heart swells at the thought of these moments in my life. She is so kind natured. To those parents of a child with DS, you know what I mean. I love each of my babies the same, yet different. Molly is truly a child of GOD and I am soooo proud to be her mommy. I have said this at least a dozen times over, but I know how lucky I am that she is and always has been healthy and maybe, just maybe, that is why I do not wish the extra chromosome away. I read many blogs of the health struggles with DS and I really don't get frazzled by it so maybe not?
I am one lucky woman. I have my two boys, two girls (Twins to boot!) and THREE 21st chromosomes.

I received this email today and if you have time, please read. I think it puts my words onto paper (in a cute way). Exactly how I feel in regards to being a mommy to a child with DS:
Down syndrome is a genetic disorder characterized by a triplication of the genetic material on the 21st chromosome. This trisomy occurs with the first division of the developing zygote, as a result there is extra genetic material present in every cell of the individual.Recently, science has discovered that this cellular abnormality is highly contagious. As result, family members (and even friends) of individuals with Down syndrome often find themselves exhibiting dramatic changes due to this "something extra" permeating their bodies at the cellular level. These changes manifest themselves in a number of ways. Something extra in the visual cortex results in parents who view the world differently. In addition to seeing things in an entirely new light, these parents also report having an increased ability to focus on what is important. Spontaneous appearance of tears of joy have also been confirmed.The section of the brain used in logical thought undergoes dramatic changes. Parents suddenly find themselves able to comprehend and discuss complex medical procedures. The ability to decipher long strings of acronyms appears almost immediately and it is not uncommon for affected parents of newborns to be able to differentiate between ASD, VSD and PDA. Familiarity with G-tubes, Pic lines and the NICU is another side effect.Over time, the entire nervous system is transformed, enabling parents to perform tasks previously thought impossible. These changes result in individuals finding the nerve to advocate before large crowds, speak to classrooms of medical students and educate the population at large about issues they are passionate about. These changes are closely tied in to dysfunctions in the verbal abilities, which makes it virtually impossible for parents to bite their tongue. Often, individuals who previously considered themselves reserved will find themselves outspoken and effective communicators.The pulmonary system is altered to a dramatic extent. Parents report having their breath taken away at the slightest prompting. The cardiovascular system develops similar vulnerabilities and reports of hearts pounding loudly and swelling unexpectedly are not uncommon. One mother reported that her heart skipped a beat when her son smiled at her for the first time.The extremities are also altered. Arms reach out to strangers for support, and in turn, hands comfort and nurture those in need. Legs strengthen and balance improves, allowing parents to stand firm in their convictions and walk without faltering, even when shouldering a heavy load.Scientists are baffled by the widespread scope of these symptoms. Equally perplexing is the response of those afflicted. Parents readily acknowledge fundamental changes in their being, however, almost universally declare a preference for their new, altered level of functioning. "I wouldn't change a thing" is a common refrain.Apparently, the presence of a little "something extra" enhances the lives of individuals fortunate enough to be infected.

3 comments:

Michelle said...

Nice post! I love those big hugs, too. We joke that Ruby's new motto is "Will Walk for Hugs!"

Mommy to those Special Ks said...

Great post! I've read so many out there on both sides of the coin today! Thanks for sharing!

valmg said...

Found you through 5Min.
I have 2 sons, my youngest has Down Syndrome.
I wouldn't change a thing either.
I love the email you shared as well.